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Government Medicine United States IT

Feds Plan For 35 Agencies To Collect, Share, Use Health Records of Americans 209

cold fjord writes: The Weekly Standard reports, "This week, the Department of Health and Human Services (HHS) announced the release of the Federal Health IT Strategic Plan 2015-2020, which details the efforts of some 35 departments and agencies of the federal government and their roles in the plan to 'advance the collection, sharing, and use of electronic health information to improve health care, individual and community health, and research.' ... Now that HHS has publicly released the Federal Health IT Strategic Plan, the agency is seeking the input from the public before implementation. The plan is subject to two-month period of public comment before finalization. The comment period runs through February 6, 2015." Among the many agencies that will be sharing records besides Health and Human Services are: Department of Agriculture, Department of Defense, Department of Education, Department of Justice and Bureau of Prison, Department of Labor, Federal Communications Commission, Federal Trade Commission, National Aeronautics and Space Administration, Office of Personnel Management, National Institute of Standards and Technology.
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Feds Plan For 35 Agencies To Collect, Share, Use Health Records of Americans

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  • Not to mention (Score:5, Informative)

    by JRV31 ( 2962911 ) on Wednesday December 10, 2014 @09:59AM (#48563791)
    The NSA, CIA, and FBI.
    • Re: Not to mention (Score:2, Insightful)

      by Anonymous Coward

      Dice needs to share why Timothy is still employed and why Bennett Haselton uses the site as his blog. Transparency!

    • by BreakBad ( 2955249 ) on Wednesday December 10, 2014 @10:26AM (#48564027)

      They screwed up by not arbitrarily inserting the word freedom in the title, e.g. "Federal Heath IT FREEDOM Strategic Plan". Or replacing 'strategic', sounds to much like a battle plan.

    • Re:Not to mention (Score:5, Insightful)

      by cayenne8 ( 626475 ) on Wednesday December 10, 2014 @10:29AM (#48564051) Homepage Journal
      Well, this should pretty much close the loop on the "Big Brother" initiative that the Feds have obviously been working towards.

      I wonder if there is any way to opt OUT of this. I don't see that the Federal govt needs to know or store or handle my personal medical information.

      I'm happy to take my chances without them handling this, I've done quite well without it all these many years of my life so far.

      • Move to another country where privacy means more than a door on a commode stall. That's about the extent of available options.

        • by gstoddart ( 321705 ) on Wednesday December 10, 2014 @11:09AM (#48564311) Homepage

          Move to another country where privacy means more than a door on a commode stall. That's about the extent of available options.

          Of course, there's no guarantee the US hasn't hacked that country's computers, telecommunications, or enacted a data sharing agreement with that government.

          Seriously, name me a single country which provably hasn't been hacked by the US, or directly share data with the US, and which would be your bastion of privacy.

          I have my doubts such a place exists.

        • by NatasRevol ( 731260 ) on Wednesday December 10, 2014 @11:10AM (#48564325) Journal

          On the plus side, you'll probably live longer.

          http://en.wikipedia.org/wiki/L... [wikipedia.org]

          • On the plus side, you'll probably live longer.

            http://en.wikipedia.org/wiki/L... [wikipedia.org]

            You know..I'd just rather take my chances and have an Opt In for it if I wanted it.

            Looking at that link it says "The figures reflect the quality of healthcare in the countries listed as well as other factors including ongoing wars, obesity, and HIV infections".

            Frankly, I dunno what having the Feds have such extreme access to my medical records would to to help prevent my life expectancy with regard to wars, obesity and HIV,

          • by smchris ( 464899 )

            If you're one of the ones they want to?

        • by lgw ( 121541 )

          Move to another country where privacy means more than a door on a commode stall.

          Tonight in a dream I received a mysterious message from the future "treasure the door on your commode stall while it's still legal". Now it makes sense!

        • by swb ( 14022 ) on Wednesday December 10, 2014 @11:32AM (#48564507)

          I'm curious how data sharing works in those countries with nationalized health systems. I'd wager there's at least as much information sharing there as anywhere else.

      • 'Opting-out'

        That only works if they don't have the information in the first place; does anyone really believe at this point that anyone actually deletes anything when you tell them to? That only works when they don't have anything of yours in the first place.

      • by dywolf ( 2673597 ) on Wednesday December 10, 2014 @12:09PM (#48564737)

        Before we cower in fear because ZOMG EVERYONE KNOWS EVERYTHING ABOUT ME....lets consider some things:

        -there has been a push for a long time to move medical records to electronic format. we've been promised cost reductions as a result, as well has better/quicker care
        -most health records still paper instead of electronic. the move to electronic records has largely been a failure; one reason is the resulting cost reductions that have been promised have been slow to materialize, if theyve materialized at all.
        -those that are, are not in some large nationwide or accessible database
        -under federal law personal health information is private and cannot be released to outside parties without consent
        -under federal law any information that is released must be anonymized; ie, no SSN or names or other personally identifiable information
        -google facebook and other data miners probably already know more about your current health needs than these records would tell someone, and they already associate it with you (ie, their data isnt anonymous)

        So we're not talking about the FBI or NSA using this to find out you have irritable bowel syndrome.
        (chances are they already know from other sources like Facebook anyway...*tin foil hat*).
        and they likely wouldnt care anyway (life is not a hollywood movie).

        No, its not readily apparent why the Dept of Ag might need health data.
        But health researchers absolutely. And they get anonymized health data already.
        But if we considered something like antibiotic resistance and hte theory that overapplication to livestock is a factor, I could see a scenario where health researchers partner with Dept of Ag to study the effects of antibiotic usage on livestock.

        In fact the anonymous nature of this data is a big factor in the outrage over the House bills just a week or two ago that purported to "ban secret science" by requiring full disclouse over everything, and banning agencies from making decisions based on "secret science or data". This would have the efect of banning hte CDC or other health agencies from making decisions based on research using this anonymous data....data that is anonymous because of privacy laws. Effectively hamstringing the agencies compeltely.

        All in all, teh cowering in fear and conspiracy reactions to this are just FUD.

        • by dywolf ( 2673597 )

          left out a sentence:
          "to study the effects of antibiotic usage on livestock."
          should read:
          "to study the effects of antibiotic usage on livestock, and use health data to correlate with the rise of the resistant germs".

        • by xanthines-R-yummy ( 635710 ) on Wednesday December 10, 2014 @12:47PM (#48564987) Homepage Journal

          Yes, the National Institutes of Health already has an anonymized database of the health records from patients in their clinical trials and a company called Explorys (no, I don't work for them, either), is doing something similar on a larger scale across multiple hospital systems. Having CMS and HHS involved to add more data is definitely a good thing, if done correctly. Links below.

          http://btris.nih.gov/ [nih.gov]
          https://www.explorys.com/ [explorys.com]
          https://www.explorys.com/about... [explorys.com]

        • If they want this information from me, anonymous or not, they should have to get my explicit "OK" to use my data, and not allow it to be gathered by default.

          Nothing really is more private than my medical records. I'm still trying to find in the Constitution, amongst the narrowly defined, limited, enumerated powers the Federal Govt is supposed to have where they are to gather all the information they can on me, a law abiding citizen, for any type of usage.

          I'm trying to find even the stretch for "interstat

          • by dywolf ( 2673597 )

            as i stated, they already do require your consent.
            your health records are a private matter between you and your provider.
            they are private and confidential and federal law already recognized this.

            thats not to say they cant get it. there are legal means that already exist, like supeona or warrant.
            i cant think of a situation offhand for either that would require it, but those mechanisms do exist.

            point is, this plan from HHS obviously would have to comply with existing law.
            which means anonymized records obtaine

        • by JDAustin ( 468180 ) on Wednesday December 10, 2014 @01:51PM (#48565461)

          And yet IRS has been used for political gain and private citizens tax information have been turned over political operatives. This was illegal under federal law, but still happened with no consequences.

          What makes you think that this will not happen with private citizens medical info?

        • by Yakasha ( 42321 )

          So we're not talking about the FBI or NSA using this to find out you have irritable bowel syndrome.
          (chances are they already know from other sources like Facebook anyway...*tin foil hat*).
          and they likely wouldnt care anyway (life is not a hollywood movie).

          You're right. They don't care about that.
          But they do care about things like prescription habits (Your receiving & your doctor's prescribing), GSWs, abortions (Did you forget Republicans are still trying to ban those?), stem cell treatments, assisted suicide, plastic surgery, and any other medical procedure they're trying to restrict or ban, or they feel indicates criminal activity (too many chemical burns? Maybe you have a meth lab).

          Just because you or I can't think of a way to abuse the data now, d

        • by JBMcB ( 73720 ) on Wednesday December 10, 2014 @02:26PM (#48565799)

          So we're not talking about the FBI or NSA using this to find out you have irritable bowel syndrome.
          (chances are they already know from other sources like Facebook anyway...*tin foil hat*).
          and they likely wouldnt care anyway (life is not a hollywood movie).

          No, here's what will happen.

          There will be a murder somewhere. There will be blood left at the scene. They'll type out the blood and find it contains an uncommon antigen. They'll search out the health database looking for people who knew the victim with that antigen. If that fails, they'll look for people who just lived near the victim. They'll cross reference cell records and find out you were in the area when the murder occurred (which doesn't prove you were there, just that your cell phone was within a few miles of a cell tower, which of course it was as you live in the area.)

          Boom - you're a suspect in a murder case.

          This is, granted, a limited example, but the possibilities for abuse are nearly limitless.

        • by magarity ( 164372 ) on Wednesday December 10, 2014 @02:27PM (#48565807)

          Before we cower in fear because ZOMG EVERYONE KNOWS EVERYTHING ABOUT ME

          The worst part is probably NOT going to be that they know the CORRECT things about your health; the worst part will be when they know INCORRECT things about you. People have absolutely horrible times getting off the secret no-fly list of terrorists and that's just run by one government agency. Can you imagine if you have to convince 30+ different government agencies that they have you down incorrectly as being a modern Typhoid Mary? And just after you convince one or two of them to correct your record, their system gets an update back from one of the others resetting you back to where you started?

          • Trying to get your health care records changed to only reflect accurate information now is pretty much impossible. Even the doctors cannot retract information -- only make an amendment to it. I had an associate with spinal stenosis. He was on some pretty heavy pain medicines. He ended up having a slip and fall, and went to the ER. The ER doctor was someone he had known in high school, and didn't even remember having slighted him. The doctor put him down as opioid addicted, treatment resistant, and marked h

        • Great, my data is protected by federal laws.

          So what happens when there's an "unauthorized release" of your data by a federal agency?

          Nothing!

          That's why the laws on "unauthorized release" are bogus when you're talking about the government. No penalty = no enforcement = no care.

          The TLA agencies care about your data when they need to ensure your cooperation with an ongoing investigation.

          • No penalty, unless the release happens to be info they didn't want made public.

            Otherwise, the person releasing the info has to seek asylum in Russia, apparently...

        • Some FUD for sure, but there are legitimate concerns. I personally don't want any of my health info online anywhere for any reason. This is both for potential abuse and also because I believe the health care industry and some government agencies are completely unprepared to secure this data. I also will say that the more people have to question the privacy of their health data the more it will lend itself to people editing their treatment. If a person cannot feel 100% confident that a mental health issue or

        • No doubt the data could also be used for good, as a sort of side effect.

    • Re: (Score:3, Insightful)

      by operagost ( 62405 )

      Why have HIPAA, when tens of thousands of federal employees will have access to our personal information?

      This is what you wanted, Democrats.*

      * based on Congressional Record of ACA voting

      • Re: (Score:3, Informative)

        by dywolf ( 2673597 )

        I am quite sure you have no clue what you are talking about.
        The myths about HIPAA and teh ACA refuse to die because of ignorance like yours.

        -For starters they do not and will not haev access to your private health information.
        -HIPAA largely doesnt aplpy to the ACA itself or mechanisms.
        -specifically HIPAA does not apply to the exchange website, which is the only part of the ACA that even uses your personal information, but notably does NOT use your private health information.
        -All ACA does is provide some inc

  • " Among the many agencies that will be sharing records besides Health and Human Services are: Department of Agriculture, Department of Defense, Department of Education, Department of Justice and Bureau of Prison, Department of Labor, Federal Communications Commission, Federal Trade Commission, National Aeronautics and Space Administration, Office of Personnel Management, National Institute of Standards and Technology."

    In other words, almost everyone except YOU!

    • Someone want to tell me how this doesn't run foul of HIPAA?

      I don't remember signing a release form...

      • I don't remember signing a release form...

        Hmmm ... how's that go again ... oh, yeah ... I have altered our deal, pray I do not alter it further.

        You really think you get a choice in this?

    • Working from personal experience: The DoD is a surprisingly huge healthcare provider. I think their need for access to the records should be fairly obvious.
      "Department of Justice and Bureau of Prison" - same deal.

      DoA, DoE, DoL, NASA, probably research.
      OPM, NIST, FTC - management, figuring out costs and such.

      Most of the organizations should have no need for non-anonymized data.

      • Part of your health record is who accessed it. That's in important element in lawsuits for negligence in reading, say, mammograms. So, "all your health records" should include the all the accesses. Bet you the NSA isn't going to show up on anyone's records.
        • The NSA already has a problem with collecting way more data than it could ever analyze. What do you think it could data-mine from medical records that wouldn't be duplicated elsewhere that would actually be useful?

          The NSA currently deletes something like 99.999% of the data it collects without ever looking at it.

  • by artlu ( 265391 ) <artlu@3.14artlu.net minus pi> on Wednesday December 10, 2014 @10:01AM (#48563805) Homepage Journal

    Although I knew that I would lose several civil rights, such as carrying a firearm, etc. I never believed that being put into the Department of Justice and the Federal Bureau of Prisons would mean that my personal health history would be shared across thirty-five departments. I do not mind this, and it does not surprise me. However, this is just another example of big brother making decisions that are outside of my control.

    See my story at The Market is not Random. [tminr.com]

    -Anthony

    • by Anonymous Coward

      Although I knew that I would lose several civil rights, such as carrying a firearm, etc. I never believed that being put into the Department of Justice and the Federal Bureau of Prisons would mean that my personal health history would be shared across thirty-five departments. I do not mind this, and it does not surprise me. However, this is just another example of big brother making decisions that are outside of my control.

      See my story at The Market is not Random. [tminr.com]

      -Anthony

      Just my opinion...

      When you're one of the few people who stays healthy through good nutrition and didn't get caught up in the medical matrix, so you don't take a prescription and don't require the dependency-inducing treatments of allopathic medicine, you don't really have much medical record to share.

      If I ever got a broken bone, hit by a car, something like that, I want an allopathic doctor. Trauma is what they're good at. Maintaining health? They fucking suck. Any chronic condition would be my own fail

      • by Anonymous Coward

        Any chronic condition would be my own failure to live correctly.
         
        Go tell that to a type-1 diabetic.

      • Although I knew that I would lose several civil rights, such as carrying a firearm, etc. I never believed that being put into the Department of Justice and the Federal Bureau of Prisons would mean that my personal health history would be shared across thirty-five departments. I do not mind this, and it does not surprise me. However, this is just another example of big brother making decisions that are outside of my control.

        See my story at The Market is not Random. [tminr.com]

        -Anthony

        Just my opinion...

        When you're one of the few people who stays healthy through good nutrition and didn't get caught up in the medical matrix,

        Oh how naïve of you... You DO remember that the ACA mandates coverage for 1 doctor visit a year for a physical. They will now know that you did or didn't make that visit, because it is the LAW now that you have health care insurance. The IRS will have to know about your insurance status to make sure you have it or paid your fines. So you may not have any health issues of interest, but information about you will still be available, like it or not.

        Your only way of "opting out" of such tracking is to

      • Ms. McCarthy, is that you?

      • Or, you know, a genetic flaw, exposure to a disease, or environmental contamination. Also, allopathic medicine is a technically incorrect nomenclature that would probably not accurately apply completely to any kind of doctor except for an anesthesiologist.
    • And that's not what the article says neither. Maybe many of you should read it before posting. Oh! Crap! I forgot it's /.!
      • by artlu ( 265391 )

        the article is about sharing information without disclosure... what did I miss?

        • You missed that whenever the plan is about sharing information, it doesn't mean the role of each organization involved is to grab the information. The sharing of the information amongst the interested parties implies third parties which will not have a right to look at the information itself but still have a role to make the plan a reality. http://www.weeklystandard.com/... [weeklystandard.com]!

          The summary is written to let people think all these organization will have full access to health records of everyone in USA. That is

    • Why on earth would they not get to find out? While you're an inmate, they are directly responsible for your care. They need to know what is and has been wrong with you so that they can get that right.

  • What could possibly go wrong?

    Are these agencies going to be covered under HIPAA? Or is this going to be a big giant free for all?

    Because this sounds like a huge list of agencies which may or may not have any experience in not sucking at handling this kind of data.

    I predict this will more or less put the private information of pretty much everyone into pretty much every government agency, and that this will be hacked and leaked 10 ways from Sunday.

    • What could possibly go wrong? Nothing. it's for our own health and safety. Don't you want to stay healthy?
      Are these agencies going to be covered under HIPAA?

      Nice one, since when does any law apply when national security is at stake?
      I predict this will more or less put the private information of pretty much everyone into pretty much every government agency, and that this will be hacked and leaked 10 ways from Sunday.
      It already is, so what's the big deal?
      • "Are these agencies going to be covered under HIPAA?"

        Nice one, since when does any law apply when national security is at stake?

        Does the Department of Health and Human Services have a national security mandate?

        Or is everything covered under the umbrella of the Ministry of Peace now?

        • Does the Department of Health and Human Services have a national security mandate?

          Probably. Given what gets classified and then leaked it seems to be that anything that might embarrass the US Federal Government of major political leaders gets classified as a threat to national security, so why not HHS?

    • > I predict this will more or less put the private information of pretty much everyone into pretty much every government agency, and that this will be hacked and leaked 10 ways from Sunday.

      Well of course. The question is, will it be hacked while it's in beta, or after it's officially launched?

    • Are these agencies going to be covered under HIPAA? Or is this going to be a big giant free for all?

      B It's going to be a giant free for all, but don't worry, it already is. They are just adding more data, no need to worry... (sarc off)

  • uh oh (Score:5, Funny)

    by slashmydots ( 2189826 ) on Wednesday December 10, 2014 @10:10AM (#48563871)
    I'm so glad NASA is concerned about my health but I'm worried they may find out that I'm an alien.
    • by Anonymous Coward

      Well, as long as you have your green card....

    • by wiredog ( 43288 )

      NASA is concerned about the health of its employees. Especially the ones who go off planet.

      • by arth1 ( 260657 )

        NASA is concerned about the health of its employees. Especially the ones who go off planet.

        I can understand that.
        What I do not understand is NASA having a need to know who I am and whether I have been treated for hemorrhoids, dog bites and male pattern baldness, or why my girlfriend visited Planned Parenthood.

    • I didn't see anything about these agencies using data of ALL Americans. Presumably, NASA would need medical data on its astronauts and would need to house such data. Same with DoD holding data on service members, etc.
      • You seem to imply they'll be able to competently grant access to only the information they directly need. I find that unlikely.

        You really think they'll be able to set it so NASA can only see medical data on astronauts beyond the extensive stuff they probably already keep in house? NASA subjects astronauts to so many tests they probably don't need anybody else's data.

        Or do you think someone in NASA is going to be able to pretty much access everything?

        Somewhere, there's always an admin, and that person can

  • enjoy! (Score:5, Insightful)

    by argStyopa ( 232550 ) on Wednesday December 10, 2014 @10:51AM (#48564195) Journal

    Well, you guys wanted federal health care.

    Please don't act all surprised when this information is used for all sorts of other purposes.

    • by zlives ( 2009072 )

      nope didn't get federal health care at all, still in the hands of private sector.

  • 35 more ways for your private information to leak or be hacked.

  • Not Impressed (Score:5, Insightful)

    by Jawnn ( 445279 ) on Wednesday December 10, 2014 @11:00AM (#48564249)
    Privacy and and security seem to be an afterthought, at best, in these plans and associated documents. Given the fact that attacks on health care data are already growing at an alarming rate (as predicted by many analysts) and that the health care industry is 10-20 years behind financial services when it comes to security and fraud prevention, this plan seems premature. At the very least, it's stated goals need to place privacy and security at the forefront, for until that gap is closed, any effort to expand the footprint of such sensitive information is, to say the least, misguided.
  • IMHO, they should concentrate their efforts on fixing the fucked up situation with obamacare before haring off on another projects.

    Adding another half-working POS project to the mix won't help anyone except the politicians getting bribes to award contracts and the slimy bastards touting their half-assed programming/db/integration skills as being top end.

  • With all the complaints, I do wonder what percentage of US readers of this site are programmers, designers, computer scientists, etc., that are employed by the US Government. I would not be surprised that we are the majority. Still "the needs of the one" are still relevant also.
  • From peoples reactions it is readily apparent they are not reading the article, and those that are are focusing on the handful of agencies that stick out ignoring that most of them are health related agencies.

    Just another typical day on /.

    • by dywolf ( 2673597 )

      and the article itself didnt exactly do its best to point that out either. liek usual, they chose a hook to get eyballs, and that hook was to point out the agencies that dont have an immediately apparent connection (though some minor thought will lead to one)

  • Has any individual ever been held responsible for a privacy leak?
    Gone to jail? Paid a fine? Flogged in the village square?

    Would it make a difference if a particular person or group would be named as the responsible party and dire consequences would result from any leak? Consequences including loss of income, fines, jail time and never being able to take a similar job? OTOH, if they do the job well, they are well paid and respected.

    Why wouldn't Sony or Target or a big government agency want this?

    This is exac

  • If you like your insurance you can keep your insurance.
    If you like your doctor you can keep your doctor.
    If you like your privacy you can keep your privacy.
    If you like your freedom ...

    Thank You, Jonathan Gruber [nationalreview.com]

    Obamistas believe they had to lie to pass Obamacare because Americans are stupid.

  • This looks like a weird idea. European countries with socialized healthcare do not have medical records shared among a bunch of state agencies. In most countries there is not even an electronic record.

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